Rare Disease Day 2026

Webinar on Homozygous Familial Hypercholesterolemia Management (3/3) – FH in women – Part 2/2
Lale Tokgözoğlu,Liam Brunham,Meral Kayikcioglu
February 19, 2026 | HoFH Awareness Day, Rare Disease Day, Webinars on-demand
Webinar on Homozygous Familial Hypercholesterolemia Management (2/3) – FH in women – Part 1/2
Kirsten Holven,Jeanine Roeters van Lennep,Marianne Benn
February 5, 2026 | Rare Disease Day, HoFH Awareness Day, Webinars on-demand
Webinar on Homozygous Familial Hypercholesterolemia Management (1/3) – Implementing current guidance
Marina Cuchel,Evangelos Liberopoulos,Stefano Romeo
January 22, 2026 | Rare Disease Day, HoFH Awareness Day, Webinars on-demand
Diagnostic Challenges In Familial Chylomicronemia Syndrome: The Relevance Of Lipoprotein Lipase Activity Beyond Scoring Systems
Gabriela Berg
May 7, 2025 | Rare Disease Day, Workshop: New risk factors for atherosclerotic disease
Pharmacological therapy in patients with Familial and Multifactorial Chylomicronemia Syndromes
Philippe Moulin
October 15, 2023 | Rare Disease Day, Lipid Clinic Network
Challenges for Children with FH
Albert Wiegman,Danique van den Bogert,Noel Peretti
September 29, 2023 | Rare Disease Day, HoFH Awareness Day, Webinars on-demand, Joint FH Webinar series 2023: Let’s manage FH together
Access to Treatment for HeFH and HoFH
Meral Kayikcioglu,Cheryl Lichaa,Neil Johnson
September 28, 2023 | HoFH Awareness Day, Rare Disease Day, Webinars on-demand, Joint FH Webinar series 2023: Let’s manage FH together
Importance of Measuring Lp(a) in patients with HeFH & HoFH
Florian Kronenberg,Emma Print,Jeanine Roeters van Lennep
September 27, 2023 | Lp(a) Awareness Day, Rare Disease Day, HoFH Awareness Day, Webinars on-demand, Joint FH Webinar series 2023: Let’s manage FH together
Screening: experience from cascade screening, universal screening and latest insights on screening on the EU level
Tomas Freiberger,Indy Bangma,Nicola Bedlington
September 26, 2023 | Rare Disease Day, Webinars on-demand, Joint FH Webinar series 2023: Let’s manage FH together
Genetics in HeFH and HoFH: the latest insights
Mafalda Bourbon,Thanos Pallidis,Philippe Moulin
September 25, 2023 | HoFH Awareness Day, Rare Disease Day, Webinars on-demand, Joint FH Webinar series 2023: Let’s manage FH together